Happy Monday! Over here we're beyond thrilled to be back to a "normal" routine. For those of you who follow me on Instagram you know we've had a very tumultuous past few weeks. And Hurricane Irma was the least of our problems!
The Clif Notes version is that our oldest baby boy, Milo, was diagnosed with Guillain Barre Syndrome. He spent 13 days in the Pediatric Children's Hospital and 6 of those days in the ICU. What started out as a tummy ache got him admitted to the hospital for what we thought was going to be a quick 1-2 night stay. While the doctor's were able to rule out an appendicitis after a CT scan, the admission ended up being a blessing in disguise since we were literally in the hospital, actually being seen by a pediatrician who was about to discharge us, when Milo developed facial paralysis and painful weakness in his arms and legs. It was the scariest moment of any parents life -- no control, total fear, and lots of unknowns. Fortunately, Milo had an amazing team of doctors and nurses around him who were able to help us get answers and treatment immediately. We are forever thankful and indebted to them!
After countless rounds of tests, blood work, a spinal tap, and two MRIs, Milo's neurologist eventually diagnosed him with GBS (something we had never heard of and had to Google). We were reassured that this scary and rare (1 in 100,000 cases) autoimmune condition was treatable and our typically healthy 5 year old would be back to his energetic and pain-free self in time. How long though, no body knew. We were told it could be a few weeks, a few months, or even years.
Luckily, we are BEYOND grateful that Milo has made an incredibly speedy recovery. He was discharged from the hospital just 13 days after being admitted and got the all-clear from his neurologist last week to return to school today! Hallelujah!
While Milo still says he feels a bit "wobbly", he's walking, running, sitting criss-cross applesauce, and continuing to improve every day. It really is a blessing and we are so thankful for all of your well-wishes, thoughts, prayers, and concern over these last few weeks. Thank you, thank you, thank you!
So now that we're home and Milo's back to his "normal" self -- he'll still need some OT and PT to regain full strength and mobility -- we are doing anything and everything (within reason and without completely spoiling him!) to put a smile on his cute little face. We've booked a family trip to NYC (his choice!) for the Fall and he's requested a "new bedroom" that involves some redecorating....he's totally my kid!
While we weren't planning a whole new bedroom makeover until we found a house (he REALLY wants a bunk bed when we move), we're more than happy to do a little updating, rearranging, and small additions to make his space more "big kid kindergartener cool" and less "preschool, little baby" (his words).
We spent the weekend moving things around, spackeling holes, and editing his toys down to what he actually plays with. The room is still work in progress but you'll get the idea from these iphone shots I snapped this morning.
Milo's also been itching for a "big boy desk" to do his kindergarten homework. You may remember I was searching for desks at the end of the summer that I posted about here. Well, that was put on hold for a bit, but we've since decided on one!
I'll keep you posted on how this room evolves!